San Francisco Bay Area Lupus Support Group

Lupus Foundation of Northern California Logo

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Join the
Lupus Foundation of Northern California, our main chapter

Without them we wouldn't exist! 

 

LFNC 5K Walk - 6.12.2011
Sun, June 14, 2015

Join our team
The Lupus Fighters!


Walk with Us to Cure Lupus Sat, Sep 12, 2015

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THE LUPUS FIGHTERS!

 


Walk for Lupus Now
Sun, Oct 25, 2015

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THE LUPUS FIGHTERS!

UPDATED 05/01/2015 LUPUS AWARENESS MONTH!

OUR MISSION is to build a supportive community for all people living with lupus, their families and friends so that they don't have to deal with the disease alone. We are not exclusive and welcome anyone who needs lupus support in the San Francisco-Bay Area.

Lupus Events - Lupus Awareness Month!

Friday, May 1-May 31 - May is National Lupus Awareness Month

What can WE do?
+ Attend our lupus support group meeting on Saturday, May 16!
+ Join our team, The Lupus Fighters! in 3 Lupus walks!
   6/12/15 - LFNC's 5K Run & Walk for Lupus: Drumbeat to a Lupus Cure
   9/12/15 - ALR's Walk with Us to Cure Lupus
   10/25/15 - LFA's Walk to End Lupus Now
+ Participate in the Events listed below!

What are some local and national organizations doing?

Lupus Foundation of Northern California:
See their schedule of events in May [PDF]

Alliance for Lupus Research Get in On It campaign:
http://www.lupusresearch.org

Lupus Foundation of America:
http://www.lupus.org/action/lupus-awareness-month

Lupus Research Institute:
http://lupusresearchinstitute.org/lupus-advocacy/awareness

Fridays, May 1, 8, 15, 22, 29 - Healthier Living workshop series: Chronic Disease Self-Management Program
Second class in free 6-week Chronic Disease Self-Management Program developed by Stanford School of Medicine and co-sponsored by San Francisco Department of Aging and Adult Services & 30th Street Senior Center/On Lok. Focus on participant empowerment, support and skill development to manage chronic health conditions.
Time: 9 am - 11:30 am
Location: Central YMCA http://www.ymcasf.org/central/, Boeddeker Park, 246 Eddy Street at Jones, SF 94102
Includes refreshments and gifts, certificate upon completion.
RSVP: Gloria Garcia, 415.292.2316, ggarcia@ymcasf.org
Contact: Carmen Lee, 415.550.2257, carmenlee@onlok.org
Website: http://www.cahealthierliving.org/locations/san-francisco/

Saturday, May 2 - Spring Patient Education Class at LFNC – for newly diagnosed lupus patients and their family members
Contact: LFNC at (408) 954-8600 for more info
Website: http://lfnc.org/events.html

Sunday, May 10 - World Lupus Day
World Lupus Day began with a Proclamation 10 years ago by an international steering committee representing lupus organizations from 13 different nations when they met in Eaton, United Kingdom to organize the first observance of World Lupus Day. The Proclamation is a call to action for governments around the world to increase their financial support for lupus research, awareness and patient services.

***Saturday, May 16 - San Francisco Lupus Support Group Meeting |PUT ON PURPLE DAY! ***
Time
: 10:30 AM - 12:30 PM
Location
: Western Addition Library, 1550 Scott Street & Geary, San Francisco
Contact: Evanne Graté - 415.452.4270 or

Saturday, May 23 - 2015 Spring Lupus Mini-Conference: Integrative Health
Presented by the LFNC
. Dr. Barry Shibuya and Dr. Christine Elias of the Northern California Rheumatology Society will headline the conference. Key facts and research updates on lupus and how they tie into an integrative, scientific approach to lupus treatment will be the focus of the conference. Refreshments are served.
Time
: 11:00 am - 4:00 pm
Location
: Kaiser Santa Clara, 700 Lawrence Expressway, Santa Clara
Click to Register Now »
Fees: $50 for CEU attendees, $30 for non-credit attendees. Current LFNC members get a $10 discount.

Thursday, May 28 - WEBINAR: When You're Thrown for a Lup-us...Coping with Lupus (Mental and Psychological Health)
Presented by the Lupus Research Institute. People with lupus have a 50% chance of developing some form of psychological distress either from the disease itself or the effects of treatment and living with a chronic illness. Licensed clinical psychologist, Sarah S. Goozeé, Ph.D., will talk about the types of mood disorders people with lupus face and how they can be treated. She will speak about how to cultivate resilience through self-care techniques.
Time: 1:00 pm - 2:00 pm [PST]
Click to Register Now » The webinar is free.

Friday, May 29 - WEBINAR: Preventative Care Strategies: Living with Lupus
Presented by the Lupus Research Institute. Summary: People with lupus are at higher risk for heart disease, osteoporosis, and certain infections. There is no way to prevent the development of lupus; with medical care most patients can lead a full and healthy life. Dr. Fradlis will provide strategies that can be used to prevent or delay onset of complications that may arise from the flare of SLE.
Time: 9:00 am - 10:00 am [PST]
Click to Register Now » The webinar is free.

Monday, June 8 - WEBINAR: Preventative Care Strategies: Living with Lupus
Presented by the Lupus Research Institute. Summary: Lupus patients are instructed to follow a healthy diet full of fresh fruits and vegetables. But what does this mean and is it possible a healthy diet can do more to give relief and control over lupus? Although there is not an established lupus diet, preliminary studies in animals and humans have shown that good nutrition may be useful for promoting remission and reducing the severity of flare-ups.
Time: 9:00 am - 10:00 am [PST]
Click to Register Now » The webinar is free.

Sunday, June 14 - LFNC's 21st Annual 5K Run & Walk for Lupus: Drumbeat to a Lupus Cure
Time: 9:00 am
Location: West Valley College, 14000 Fruitvale Avenue, Saratoga, CA
Register now »
Northern California's largest annual lupus awareness is only months away. Online registration has opened the 21st Annual Run & Walk for Lupus with the theme "Drumbeat to a Lupus Cure." The Lupus Foundation of Northern California is going out in a big way to make northern California notice the lupus community, and we need you to join.Register to run or walk, and spread the message to everyone you know. Even form a team!

Participate in The World Lupus Google Map via the LFNC! (Ongoing)
Did you know more than 1.5 million Americans live with lupus and more than 5 million worldwide are affected with this disease. Where exactly is everyone—the survivors, their friends, family, supporters? They span the whole world. Participate now!

The 2015 LFNC Mercedes Giveaway (Ongoing until drawing on June 14)
With each $75.00 ticket, you are helping a great cause. Every penny of net proceeds will go to benefit critical patient-centric programs and services for the northern California lupus community. We thank you for your support.

Lupus in the News

(Any news stories containing advice on this website should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.)

Rituxan in Lupus: Responses Vary »
April 2015, Medpage Today

Aurinia Pharmaceuticals to Host Lupus Nephritis Opinion Leader Meeting and Webcast on May 5 in New York »
April 2015, BusinessWire

Male Fetal Cells May Protect Women With Lupus Nephritis »
April 2015, MedPage Today

Better outlook for lupus sufferers »
April 2015, Wexford People

Comparison and evaluation of lupus nephritis response criteria in lupus activity indices and clinical trials »
April 2015, 7th Space Interactive

St. Louis burning: America’s atomic legacy haunts city »
April 2015, Aljazeera America

Mother of lupus sufferer attacks critic who accused her daughter of 'lying' about being disabled after seeing her park in a handicap spot despite being able to walk »
April 2015, Daily Mail

Vitamin D Tracks Systemic Lupus Erythematosus Activity »
April 2015, Medpage Today

Visit our RESOURCES page for Clinical Trials and other lupus assistance »

 

News from the Lupus Foundation of Northern California (LFNC)

LFNC Urges Immediate Patient Access to Treatments, Calls for End to "Fail First" »
April 2015, LFNC E-Newsletter

Key Opportunities to Update Yourself on Lupus: Medical Conference, FREE Patient Education Class »
April 2015, LFNC E-Newsletter

Trophies and Medals, Philanthropy and Online Auction »
April 2015, LFNC E-Newsletter

Study Finds Risk of Low Bone Density, Carotic Arterial Disease Increases with SLE »
April 2014, LFNC E-Newsletter

LFNC Quarterly Newsletter [PDF]! »
Summer 2014

Archived LFNC E-Newsletters »
Topics include Free or Discounted Hospital Care, Metabolic Syndrome and Lupus, etc.

 

News from the Alliance for Lupus Research (ALR)

Alliance for Lupus Research Announces New Lupus Clinical Trial to Study Ustekinumab »
April 2015, Alliance for Lupus Research Press Release \ 2015

Study Identifies Protein that Triggers Lupus-Associated Immune System Activation »
April 2015, Lupus News

Corticosteroid Use by Lupus Patients Increased Risk of Organ Damage »
April 2015, Lupus Research Update Vol 4 \ 2014

Research Goal: Catch the Interferons that Cause Lupus, One Cell at a Time »
April 2015, Lupus Research Update Vol 4 \ 2014

The Latest Lupus Research Update Newsletters »
In every LRU, you'll learn about everything from the most technical advances in lupus science and ALR-funded investigator profiles, to the latest Walk with Us to Cure Lupus and grassroots advocacy program news. We are also proud to introduce a new "Face of Lupus" in each quarterly newsletter.

Alliance for Lupus Research Celebrating 15 Years: Faces of Lupus »
Faces of Lupus is a compelling storytelling platform for the diverse and broad community of individuals who are all touched by lupus to the scientists who devote their careers to finding answers that will lead to a cure. Start with founder and chairman, Robert W. (“Woody”) Johnson IV about his motivation for starting the ALR 15 years ago. His daughter was diagnosed with lupus.

 

News from the Lupus Foundation of America (LFA)

Know Lupus Campaign »
May 2015, Lupus Awareness Month

IT WAS A MOTHER'S WORST NIGHTMARE »
April 2015, lupus.org

Sleep Tight »
April 2015, Lupus Foundation of America Newsletter

Genetics and the Next Generation »
April 2015, Lupus Foundation of America Newsletter

Center for Clinical Trials: New Lupus Trial »
April 2014, Lupus Foundation of America Newsletter

Clinical Trial Opportunity - Spotlight on: The EMBODY Program »
lupus.org

Clinical Trial Opportunity - Spotlight on: The ILLUMINATE Program »
lupus.org

 

Lupus Research Registry »

SEE NEWS ARCHIVE 01/20/15 »

Do you have any lupus news you'd like to share?
Please feel free to contact us!

 

2015
SF Lupus Support Group Meetings

Saturday, May 16
10:30 AM - 12:30 PM

Saturday, Sep 23
10:30 AM - 12:30 PM

Western Addition Library
1550 Scott St. at Geary
San Francisco
View Map

Typically, we have our San Francisco Lupus Support Group meetings on the third Saturday of every other month.

Contact us if you have any questions.


WE'D LIKE YOUR ASSISTANCE

We're always looking for new ideas and help in improving our support group, such as finding speakers, fundraising ideas, and assisting us with our local Patient Education Day.

We also need volunteers for our own events as well as for other activities like the Lupus Walks.

If you have a passion for spreading awareness for lupus, CONTACT US! »